Jarod sanfilippo posts

Daily Mail It's a race against time. So sad.
Family trying to make memories for girl aged FIVE with child Alzheimer's
dailymail.co.uk
Sophia Scott (pictured), from Glasgow, Scotland, has Sanfilippo syndrome, a rare genetic and terminal condition that means she'll lose her memory and her mind and body will deteriorate.
110 months ago
Fox News Health “She’s innocent; she doesn’t realize anything’s wrong with her. She’s just happy,” Liz Dewaghe said of her daughter Zoe, who suffers from the rare disease Sanfilippo syndrome. “But she’s like a ticking time bomb.”
A treatment for Zoe: Inside the race to build a therapy for a devastating rare disease
foxnews.com
The tough road to a treatment for Sanfilippo, a rare and deadly genetic disorder, opens a window on the fraught world of drug development for rare diseases.
111 months ago
WSJ Video Can the Paleo diet really improve your health? Best-selling author and certified nutrition consultant Dianne Sanfilippo joins Lunch Break with Tanya Rivero to address the critics, dispel a few myths and share of few recipes for those who want to give Read more ... it a try.
Tips on Kickstarting the Paleo Diet
wsj.com
Can the Paleo diet really improve your health? Best-selling author and certified nutrition consultant Dianne Sanfilippo joins Lunch Break with Tanya Rivero to address the critics, dispel a few myths and share of few recipes for those who want to give Read more ... it a try.
114 months ago
WSJ Video
The Wall Street Journal
Lunch Break with Tanya Rivero: Why Wall Street’s IPO business is the worst in 20 years. Plus, the problems with sexual assault and consent in the social media age. What’s behind The Paleo Diet and does it really work? Certified nutrition consult Read more ... ant Diane Sanfilippo - Practical Paleo is here! Plus, why foreign T.V. is all the rage in the U.S.
114 months ago
People.com Sometimes the world is really depressing.
Man Gets 5 Years in Prison for Carjacking Pregnant Woman in Labor on Her Way to the Hospital
peoplem.ag
Deverey Hasani-Jarod Kelley pleaded guilty to pointing guns at a man and woman getting into a car in March 2014
127 months ago
ABC News When her son was 4, Valerie Tharp Byers was left with the feeling that something was deeply wrong with his health: http://abcn.ws/1FMGutb
Family Realizes Boy Has Rare Disease After Seeing Girl's Poignant Video
abcnews.go.com
Sanfilippo syndrome, a metabolic disorder, does not allow the body to break down certain sugar molecules.
130 months ago
ClickHole “It’s been my dream to have Madonna look in the mirror every morning and see my face."
Incredible: This Madonna Superfan Is Paying Thousands Of Dollars To Have Madonna Look Like Her
clickhole.com
The lengths some fans are willing to go to…When Diana Jarod first saw the music video for “Material Girl,” she fell in love with the young performer who would soon be dubbed the Queen of Pop. From that moment on, she went to every Madonna show, Read more ... bought every Madonna album, and decorated her home w...
131 months ago
Mike Reives URGENT: Jarods (aka u/edify) fund raiser has been opened back up. We met the goal of 9000, but now the funeral home is wanting 13000 for the service. We broke 9000 in a day. Let's see if we can get the rest!! Please share!!! Help if you can. Every li Read more ... ttle bit helps!!! http://www.gofundme.com/Jarod-Funeral-Fund
133 months ago
reddit Sad news.
RIP /r/BreakingBad moderator /u/edify, one of the nicest people I've ever known. I have been in cont
www.reddit.com
[tl;dr - give Jarod's family money to help offset the cost of his funeral](http://www.gofundme.com/Jarod-Funeral-Fund). Hi, I am not a frequent...
133 months ago
People.com "If they tell us that it's going to be another year, are we really going to continue doing this? I have no clue."
Family of Girl with Rare Disorder Quarantine Themselves for 9 Months
peoplem.ag
"Time is running out to save our daughter," Glenn O'Neill says about his daughter Eliza, who suffers from Sanfilippo syndrome
133 months ago
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