Rett syndrome posts
Mashable Ultimately, the technology gives children with Rett syndrome greater independence and control.
When a rare syndrome renders girls voiceless, tech helps them speak again
mashable.com
Rett syndrome affects girls almost exclusively, taking away the ability to speak. But eye-tracking technology can help.
115 months ago
HelloGiggles This is super important.
Moms everywhere are rallying to find a cure for Rett Syndrome
hellogiggles.com
Meet Chelsea Coenraads. For the past 18 years, she's been living with a disease called Rett Syndrome. If you're like me, you hadn't heard of Rett Syndrome until just now, which is why this month, Rett Syndrome Awareness month, is so important. Accord Read more ... ing to RettSyndrome.org, the disease is a postnata…
125 months ago
Lavita Cotton-Alford Imagine the symptoms of autism, cerebral palsy, epilepsy and Parkinson's all in one little girl. This is Rett syndrome a disorder that affects girls almost exclusively. Please support and share. Thank you
Click here to support Wheelchair van for Nevaeh by Lavita Cotton-Alford
Gofundme.com
Hi Everyone, This is my daughter Nevaeh and she is 8 yrs old. She has Rett Syndrome which is a disorder that affect girls almost exclusively. Diagnosed at the age of two, she suffers from daily seizures, the loss of purposeful use of her hands, scoli Read more ... osis which will require surgery in the near fu...
126 months ago
HuffPost Impact The father started running marathons with his daughter, pushing her in a stroller, while the wind caressed her face, bringing her joy.
Running To Overcome A Disease: One Family's Battle With Rett Syndrome
huff.to
Until she was 18 months old, Maria Ferre was a healthy baby. Suddenly, she was struck with Rett syndrome, a physically debilitating condition that affects approximately 1 in 15,000 female childre
128 months ago
The WorldPost The father started running marathons with his daughter, pushing her in a stroller, while the wind caressed her face, bringing her joy.
Running To Overcome A Disease: One Family's Battle With Rett Syndrome
huff.to
Until she was 18 months old, Maria Ferre was a healthy baby. Suddenly, she was struck with Rett syndrome, a physically debilitating condition that affects approximately 1 in 15,000 female childre
128 months ago
Dan Kohs
Click here to support Help for Anna by Mandy Bergmann Kohs
www.gofundme.com
Anna is my niece. A young sweet angel, who has Rett Syndrome. Anna has been doing good until a week ago :( Because of this syndrome her immune system is not as strong as a healthy person her age. She came down with a stomach bug. Due to this she vomi Read more ... ted and aspirated it :( She was unable to bre...
128 months ago
I fucking love science
Experimental Treatment Reverses Behavioral Symptoms Of Rett Syndrome In Mice
iflscience.com
Rett syndrome is a rare genetic condition that predominately affects women, with around one in every 10,000 girls diagnosed with it. The condition is a neurological disorder that stops the nerve cells in the brain from developing properly, and will o Read more ... ften go unnoticed by parents at the beginning, wit…
128 months ago
Alexandria Poulsen Alexandria needs hero's
Alexandria’s, our small hero, contagious smile keeps our spirit and hope going in searching for a cure for Rett Syndrome. Alexandria was diagnosed July 30th 2009 with Rett Syndrome, a devastating genetic disorder that is no Read more ... t hereditary and happens primarily in girls. It is so rare that it happens in 1 in 10,000 births.
Alexandria has struggled in reaching all her milestones, but around18 months when her development took a turn for the worse, and she was not progressing. The 2 or 3 words she knew to say could not be voiced anymore. Hand movements became hand wringing or were in her mouth. She could no longer pick things up or feed herself. She lost skills she used to have. Apraxia affects her physical movement. Although Alexandria has Rett Syndrome, she is a typical 7 year old girl who enjoys music, dancing, and laughing- and loves to watch cartoons, hanging out with her friends at church, her aunt and uncle and her Grandma and Grandpa. She cannot speak or use her hands purposely, but she can hear and understand what you say. Alexandria knows more than she can say and thinks more than she can speak. We know with intense therapy she will maintain and strengthen the skills she has fought so hard to regain.
The Donations Alexandria receives will help pay for her dolphin therapy in September.
Since Alexandria doesn't have the ability to share her voice, I'm here to share her story. I am so proud thousands of others are here to share her story too.
Your help is our hope. Please share this with others, and keep her in your prayers.
If you have time please go to her GO Fund Me page and share with Alexandria your comments, she would love to hear from you.
To donate please click here: http://www.gofundme.com/AlexandriaPoulsen
CARE & CURE.
Joshua Poulsen
OIF 100% Disabled Veteran
To find more information about Alexandria and Rett Syndrome please go to these two links:
Alex is a over comer
https://www.youtube.com/watch?v=A5SRN29oyAU
Rett Syndrome Awareness, Alex's Story
https://www.youtube.com/watch?v=Wu4g9dtuLP4
Click here to support Alexandria needs hero's by Alexandria Poulsen
www.gofundme.com
Hi. Alexandria (Alex), our small hero, needs your help to participate in a unique and extremely positive therapy program using dolphins in Florida. My daughter Alex is a loving and sweet 7 year old girl, who was diagnosed July 30, 2009 with a uni Read more ... que incurable genetic mutation disorder, Rett synd...
128 months ago
Alexandria Poulsen Alexandria needs hero's
Alexandria’s, our small hero, contagious smile keeps our spirit and hope going in searching for a cure for Rett Syndrome. Alexandria was diagnosed July 30th 2009 with Rett Syndrome, a devastating genetic disorder that is no Read more ... t hereditary and happens primarily in girls. It is so rare that it happens in 1 in 10,000 births.
Alexandria has struggled in reaching all her milestones, but around18 months when her development took a turn for the worse, and she was not progressing. The 2 or 3 words she knew to say could not be voiced anymore. Hand movements became hand wringing or were in her mouth. She could no longer pick things up or feed herself. She lost skills she used to have. Apraxia affects her physical movement. Although Alexandria has Rett Syndrome, she is a typical 7 year old girl who enjoys music, dancing, and laughing- and loves to watch cartoons, hanging out with her friends at church, her aunt and uncle and her Grandma and Grandpa. She cannot speak or use her hands purposely, but she can hear and understand what you say. Alexandria knows more than she can say and thinks more than she can speak. We know with intense therapy she will maintain and strengthen the skills she has fought so hard to regain.
The Donations Alexandria receives will help pay for her dolphin therapy in September.
Since Alexandria doesn't have the ability to share her voice, I'm here to share her story. I am so proud thousands of others are here to share her story too.
Your help is our hope. Please share this with others, and keep her in your prayers.
If you have time please go to her GO Fund Me page and share with Alexandria your comments, she would love to hear from you.
To donate please click here: http://www.gofundme.com/AlexandriaPoulsen
CARE & CURE.
Joshua Poulsen
OIF 100% Disabled Veteran
To find more information about Alexandria and Rett Syndrome please go to these two links:
Alex is a over comer
https://www.youtube.com/watch?v=A5SRN29oyAU
Rett Syndrome Awareness, Alex's Story
https://www.youtube.com/watch?v=Wu4g9dtuLP4
Click here to support Alexandria needs hero's by Alexandria Poulsen
www.gofundme.com
Hi. Alexandria (Alex), our small hero, needs your help to participate in a unique and extremely positive therapy program using dolphins in Florida. My daughter Alex is a loving and sweet 7 year old girl, who was diagnosed July 30, 2009 with a uni Read more ... que incurable genetic mutation disorder, Rett synd...
128 months ago
Alexandria Poulsen Alexandria needs hero's
Alexandria’s, our small hero, contagious smile keeps our spirit and hope going in searching for a cure for Rett Syndrome. Alexandria was diagnosed July 30th 2009 with Rett Syndrome, a devastating genetic disorder that is no Read more ... t hereditary and happens primarily in girls. It is so rare that it happens in 1 in 10,000 births.
Alexandria has struggled in reaching all her milestones, but around18 months when her development took a turn for the worse, and she was not progressing. The 2 or 3 words she knew to say could not be voiced anymore. Hand movements became hand wringing or were in her mouth. She could no longer pick things up or feed herself. She lost skills she used to have. Apraxia affects her physical movement. Although Alexandria has Rett Syndrome, she is a typical 7 year old girl who enjoys music, dancing, and laughing- and loves to watch cartoons, hanging out with her friends at church, her aunt and uncle and her Grandma and Grandpa. She cannot speak or use her hands purposely, but she can hear and understand what you say. Alexandria knows more than she can say and thinks more than she can speak. We know with intense therapy she will maintain and strengthen the skills she has fought so hard to regain.
The Donations Alexandria receives will help pay for her dolphin therapy in September.
Since Alexandria doesn't have the ability to share her voice, I'm here to share her story. I am so proud thousands of others are here to share her story too.
Your help is our hope. Please share this with others, and keep her in your prayers.
If you have time please go to her GO Fund Me page and share with Alexandria your comments, she would love to hear from you.
To donate please click here: http://www.gofundme.com/AlexandriaPoulsen
CARE & CURE.
Joshua Poulsen
OIF 100% Disabled Veteran
To find more information about Alexandria and Rett Syndrome please go to these two links:
Alex is a over comer
https://www.youtube.com/watch?v=A5SRN29oyAU
Rett Syndrome Awareness, Alex's Story
https://www.youtube.com/watch?v=Wu4g9dtuLP4
Click here to support Alexandria needs hero's by Alexandria Poulsen
www.gofundme.com
Hi. Alexandria (Alex), our small hero, needs your help to participate in a unique and extremely positive therapy program using dolphins in Florida. My daughter Alex is a loving and sweet 7 year old girl, who was diagnosed July 30, 2009 with a uni Read more ... que incurable genetic mutation disorder, Rett synd...
128 months ago