Sanfilippo posts
Daily Mail It's a race against time. So sad.
Family trying to make memories for girl aged FIVE with child Alzheimer's
dailymail.co.uk
Sophia Scott (pictured), from Glasgow, Scotland, has Sanfilippo syndrome, a rare genetic and terminal condition that means she'll lose her memory and her mind and body will deteriorate.
110 months ago
Fox News Health “She’s innocent; she doesn’t realize anything’s wrong with her. She’s just happy,” Liz Dewaghe said of her daughter Zoe, who suffers from the rare disease Sanfilippo syndrome. “But she’s like a ticking time bomb.”
A treatment for Zoe: Inside the race to build a therapy for a devastating rare disease
foxnews.com
The tough road to a treatment for Sanfilippo, a rare and deadly genetic disorder, opens a window on the fraught world of drug development for rare diseases.
111 months ago
WSJ Video Can the Paleo diet really improve your health? Best-selling author and certified nutrition consultant Dianne Sanfilippo joins Lunch Break with Tanya Rivero to address the critics, dispel a few myths and share of few recipes for those who want to give Read more ... it a try.
Tips on Kickstarting the Paleo Diet
wsj.com
Can the Paleo diet really improve your health? Best-selling author and certified nutrition consultant Dianne Sanfilippo joins Lunch Break with Tanya Rivero to address the critics, dispel a few myths and share of few recipes for those who want to give Read more ... it a try.
114 months ago
WSJ Video
The Wall Street Journal
Lunch Break with Tanya Rivero: Why Wall Street’s IPO business is the worst in 20 years. Plus, the problems with sexual assault and consent in the social media age. What’s behind The Paleo Diet and does it really work? Certified nutrition consult Read more ... ant Diane Sanfilippo - Practical Paleo is here! Plus, why foreign T.V. is all the rage in the U.S.
114 months ago
The Wall Street Journal Lunch Break with Tanya Rivero: Why Wall Street’s IPO business is the worst in 20 years. Plus, the problems with sexual assault and consent in the social media age. What’s behind The Paleo Diet and does it really work? Certified nutrition consult Read more ... ant Diane Sanfilippo - Practical Paleo is here! Plus, why foreign T.V. is all the rage in the U.S.
114 months ago
ABC News For nearly two years, the O'Neill family stayed in isolation in their South Carolina home in an effort to save their daughter, Eliza, who was diagnosed two years ago with a rare degenerative disease called Sanfilippo Syndrome Type A.
115 months ago
Fox News A Texas family is rallying to raise awareness for Sanfilippo syndrome, a rare progressive condition that their son was diagnosed with after his symptoms were initially mistaken for autism.
Family Discovers 5-year-old Son’s Life-Threatening Condition After Reading News Story
foxnews.com
The Byers are also waiting for the results of a blood test for 19-month-old Samantha who may also be affected by the syndrome.
130 months ago
ABC News When her son was 4, Valerie Tharp Byers was left with the feeling that something was deeply wrong with his health: http://abcn.ws/1FMGutb
Family Realizes Boy Has Rare Disease After Seeing Girl's Poignant Video
abcnews.go.com
Sanfilippo syndrome, a metabolic disorder, does not allow the body to break down certain sugar molecules.
130 months ago
Daily Mail Family have had little to no contact with humans for 280 days to protect their daughter
Family have spent 9 months quarantined in home to protect ill daughter
dailym.ai
Glenn O'Neill and his wife Cara have opted to stay away from other people to protect Mr O'Neill's daughter Eliza, five, who has the rare metabolism disorder, Sanfilippo syndrome.
133 months ago
People.com "If they tell us that it's going to be another year, are we really going to continue doing this? I have no clue."
Family of Girl with Rare Disorder Quarantine Themselves for 9 Months
peoplem.ag
"Time is running out to save our daughter," Glenn O'Neill says about his daughter Eliza, who suffers from Sanfilippo syndrome
133 months ago